Copyright Stan Wasilik, 2000 - All Rights Reserved
Dedicated to the memory of Steven James Yray-Wasilik
3/25/98 - 6/9/03
|Welcome to Westbywest.com. This site is composed of real-time notes made during the extended and terminal mitochondrial illness of my son, Steven James. Note that entries were made, diary fashion, for the benefit of friends and relatives who were following our journey. As presently posted, the journal reads in reverse order. If read from the top down, it begins with the loss of Steven, and works backwards towards the early days of his illness.|
I am often contacted by others who have shared, or are in the process of sharing, similar journeys. I welcome such contact, and am happy to be an outlet or other source of support for such individuals. Our personal battle ended in loss, and I believe it is important that the entries on this loss remain intact. However, if your child, or someone you know, is battling a mitochondrial or other genetic disease, I might suggest that you read the journal from the bottom up, as I do not wish you to lose hope or courage based on our individual outcome. Medical advances continue to be made daily, and I believe the most useful information for those currently engaged with our medical system rests within the text of those active experiences.